We were so encouraged by Valjean's oxygen accomplishments on Sunday that it was terribly disappointing to see her on Monday: very weak and pale, sleeping fitfully much of the day, and breathing with enormous difficulty, even with the mask. Still, glimpses of the girl we love shone through as she opened her eyes and smiled at visitors, practically purred at Laura's massage, cracked a joke or two, and at one point burst into not-quite-identifiable song.
It's not clear whether this apparent setback is due to the change in medications, too much time on low oxygen (overreaching with the cannula), or simply the progression of the disease. Probably a combination of them all; we are complex creatures, and never more so than when we're ill. We hope for better news tomorrow.
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I am so deeply sorry to hear that Valjean is having a difficult time. My heart goes out to her and also to those of her close friends who are most involved in her care. (I notice that Giudi's latest blog was entered at 2 a.m., an hour that bespeaks a very long day.) Thank you so much for your dedication to Valjean and for your clear, sensitive updates on her condition.
Barbara Burgess
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